What Is POTS??

What Is POTS??

Sunday, August 14, 2016

What Dysautonomia Patients Should Know About Antiphospholipid Syndrome or Hughes Syndrome


This one is particularly important to me because I have suffered miscarriages. When I am in the hospital they usually give me blood thinners and use those pumps on my legs to keep me from developing clots. I go home with as much bruising on my abdomen as I have on my arms from IVs.

Dr. Vilardell from Barcelona : "There are two major "new" diseases of the twentieth century --AIDS and Hughes Syndrome."

It is also called Hughes Syndrome or sticky blood. It is associated with headaches, migraines, epilepsy, chorea, multiple miscarriages, peripheral thrombosis, demyelinating disease, Budd-Chiari syndrome, and renal vein thrombosis.

Symptoms include:

Headache or migraine
Memory loss
Visual disturbance
Heart Attach
Pulmonary Embolism
Multiple Sclerosis-like features
Gastrointestinal disorders
Problems with pregnancies

About 1/3 of women with Lupus have antiphospholipid antibodies, and a miscarriage rate of 20-50%.
About 20% of ALL miscarriages are caused by Hughes Syndrome. Treatment with aspirin or heparin results in a 90% success rate of normal pregnancy.

In younger people who have strokes, about 1 in 5 of them have undiagnosed Hughes Syndrome. The thickened blood causes TIAs, strokes and DVTs.

After you watch the antiphospholipid syndrome videos, don't forget to watch the POTS videos at the bottom of the blog. You have to scroll down for them.

This one is from a Lupus specialist, who first identified it in 1983, He has been published over 900 times in medical journals. I think it's fair to say he knows his stuff. 

Antiphospholipid Antibody Syndrome - Graham Hughes, MD, FRCP

What is Hughes Syndrome?

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