What Is POTS??

What Is POTS??

Friday, September 1, 2017

Reposting: chronic-pain-awareness-month-september


Things People With Chronic Pain Want You to Learn

One Step Forward And Two Steps Back

This will probably not be a long post. I am recovering from yet another illness.

  1. 1.
    a tendency to do nothing or to remain unchanged.

    "the bureaucratic inertia of government"

    synonyms:inactivityinaction, inertness; More
  2. 2.
    a property of matter by which it continues in its existing state of rest or uniform motion in a straight line, unless that state is changed by an external force.

When I got sick this time, I had been feeling exceptionally good for a few weeks. I had a sort of vacation with some of my family and I had plans to do things that needed doing when I got back home.

And then, WHAM! I got sick within 24 hours of getting home. Now that I feel better(I don't mean to say well) I can't seem to get my stride. It's as if someone came up and kicked my legs out from under me and I rolled down a hill and got the breath knocked out of me.

In order to get back on my feet, I went to the store with my beautiful daughter this evening. I had to use a cane to stand up. That's how weak I am. It's taking me some effort to restart.

I had a really pathetic thought while I was out. I really want to get better so that I can get a flu shot. That's going to immediately make me sick again. I haven't mentioned that I had a whole week of doctors visits, tests and procedures scheduled which I had to miss. Now I have to reschedule those as well. But I have to get well enough to be poked and prodded. 

I make a concerted effort not to feel sorry for myself, but it's difficult not to be frustrated. One thing is for certain, with chronic illness and pain, your coping mechanisms get stretched to the limit. 

When I was in the hospital this time, it was for a UTI and dehydration from vomiting. The nurse stabbed me with the IV and when it didn't work she said, "Oh, you really are dehydrated." I really wanted to slug her. When I don't feel well my tolerance for stupid or condescending remarks is minimal at best. 

And then I had people aggravating me via text and phone. When you can't hold your head up, talking on the phone isn't on the to do list. You really want to cut loose with some expletives. No, I don't want to buy anything, do anything for you, be anything or hear anything.  

September is Chronic Pain Awareness Month. Maybe in time, people will get it and stop saying stupid things to sick people. In the meantime, all we can do is try to educate them. I know I hate it when I have been sick and someone tells me I should get out more or be more active. I've learned what my limitations are and I am not pushing myself without a good reason. I will eventually get
my steam back. 

Wednesday, July 19, 2017



I have Sjogren's Syndrome, pronounced“SHOW-grins”. It is an autoimmune disease that affects the body's ability to produce tears as well as affecting the exocrine (moisture) glands all over the body.

Over the last few years, something that people take for granted has become increasingly difficult for me. I can't cry, or at least not to the degree that I used to be able to or when I ordinarily would have. It really bothered me when my husband died a few years ago. Not only did I not have the release, but I worried that others would think I was cold and uncaring. I loved my husband deeply.

I used to think it was related to depression and due to things that have happened in my life that cause me to dissociate. But it turns out there is more of a physiological reason.


To begin with, the surface of your eye is made mostly of water. And your tears are divided into two categories: Lacriminization and crying. You have lacrimal glands that are between your eyelids and your eyeball. When the gland on the outer corner of your eye, near the temple, produces a tear, you will blink and that will spread the tear across your eyeball. This takes about ¼ of a second.

Then the tear goes to the lacrimal punctum. Wikipedia describes it as follows: “ There are two lacrimal puncta in the medial (inside) portion of each eyelid. Together, they function to collect tears produced by the lacrimal glands. The fluid is conveyed through the lacrimal canaliculi to the lacrimal sac, and thence via the nasolacrimal duct to the inferior nasal meatus of the nasal passage.”

That is just a complicated way of saying there is a natural drain in your eye and from there it goes into your nasal passages and out your nose. This is why your nose also runs when you cry. Who knew?

 lacrimal drainage

During periods of high tear production, like a highly emotional state or severe irritation, the drainage system can't keep up and the tears run down your face. OR at least they are supposed to.


Under normal circumstances, your body has three different types of tears that it can produce. They are basal, reflex and psychic tears. Basal tears serve the purpose of keeping your corneas lubricated so that your eyes don't dry out. Reflex tears form as a response to irritation like when something gets in your eyes or when you are exposed to the noxious vapors of an onion, or you open a bottle of ammonia.
And last but not least, there are the psychic tears. These are the ones you make when you are experiencing a strong emotion, like sadness or happiness, or anger or physical pain. Some people actually feel better after a good cry due to a pain-killing neurotransmitter produced by your body called leucine enkephalin. These emotional tears also contain more protein than the ones produced in response to an irritation.


But how does this factor into your emotions? Within your brain, there is an area called the limbic system, and within it is an area called the hypothalamus. This is part of your autonomic nervous system. Your autonomic nervous system or ANS controls the things that you don't, such as tears, sweat, heart rate, breathing, etc. One of the neurotransmitters involved in the ANS is acetylcholine. It affects the lacrimal or tear-producing system.

Under normal circumstances, you feel a strong emotion, and this causes your ANS to signal tear-production.

When you cry, there are other things going on within your ANS. Part of your ANS called the sympathetic nervous system which controls the fight or flight response will also cause you to sweat, and your breathing will slow down, and you will also get what is called the globus pharyngis. That's the feeling of having a lump in your throat. When your ANS isn't working properly it is called dysautonomia.


Researchers Jonathan Rottenberg and Lauren M. Bylsma from the University of South Florida found that there are benefits to crying. Crying helps your body control breathing when it has been aroused in a negative way. https://www.livescience.com/5238-hate-cry.html

When a person experiences overwhelming stress and arousal, his or her heart rate increases and the body begins to sweat. But as a person cries, his or her breathing slows, rendering a calming effect, according to Rottenberg. 

The reason some people find having a good cry pleasant is that the calming effect of crying lasts longer than whatever stressor caused them to cry in the first place.

There are major areas of your life that can be affected when you can't cry. There is more going on here than a response to a stimulus. Evolution has given you this means of crying out in a non-verbal manner to others around you. It allows them to see that you need emotional help. When you receive social input from others it strengthens your emotional bonds with them because they share in your experience. When others say, “I can see that you are sad. I am sorry you are feeling this way. How can I help? Here is a big hug.” You will feel better. And they, in turn, feel empathy and sympathy. These responses are very important when babies cry. They can't speak and therefore need to be able to communicate so that their needs are met. They cry because they are hungry or in pain or are angry. And then their parents respond to them and this causes bonding.

When you cry it can show that you are submissive or vulnerable. This can cause potential attackers to perceive you as weak and underestimate you, or feel empathy toward you, thereby avoiding an attack. In a relationship, it might cause the other person to change their behavior in many ways.

In other social situations, crying can show trust a need for affection, and this results in bonding.

There have been studies that show women actually do cry more than men. However, men cry over the most of the same things as women do, like, death, homesickness or a romantic breakup. Women cry more over small things, but men cry more in response to happiness. The differences between the sexes can be attributed to several things. Culture, male testosterone levels( which inhibit crying) and their work environments.

When you can't produce tears, how do others know that you feel grief, despair, frustration, helplessness, powerlessness, pain, happiness, anger and empathy, pride, longing, anger, frustration sadness or love? If you are able to produce the sobbing sounds of crying, people might not feel empathy toward you if they don't have the visual cue of tears and then assume you are faking the emotion. If they don't see them signaled by the shedding of tears, then we lose out on the social interaction and response that we should get. The result is that we can be isolated socially. Tears are as important as facial expressions. “research provided further evidence for the facilitating effect of tears on processing emotion recognition and social judgments. Their function seems to surpass the connection with merely enhancing sadness recognition. Rather, tears seem to play a significant role as a visual signal in terms of promoting (pro)social behavior.” Emotional Tears Facilitate the Recognition of Sadness and the Perceived Need for Social Support

Studies have found that people feel better when they are with another person when they cry, which indicates that crying helps us to bond and get emotional support from other people. Dry eyes aren't just a medical issue.


Humans are also the only primates with the sclerae(the white outer layer of the eye) allowing both the color of the eye and how red the conjunctiva is to show up. Scleral redness shows important biological and social information about you. Other people make judgements about your sadness, healthiness, and attractiveness based on their perception of the redness of your eyes.

When your eyes are red it is mostly caused by blood vessels in your conjunctiva becoming dilated. The conjunctiva is the transparent membrane that covers the sclera or white part of your eye. When your eyes are red, others perceive you to be sadder, older, less healthy, and thereby, less attractive. On an evolutionary level, you don't appear to be biologically fit to a prospective mate. Binocular Symmetry/Asymmetry of Scleral Redness as a Cue for Sadness, Healthiness, and Attractiveness in Humans

People who have Sjogren's Syndrome and eye irritation can become isolated because of other people's perception of them.


Something worse than all of this is that another problem can be overlooked. There is a condition or symptom of depression and almost suicidal depression. Sometimes it is called emotional blunting and other times it is called a flat affect. The Inability to Cry Medical Definition of Flat affect

I had an experience with this once. I was put on an antidepressant. It caused me to feel this way. It was one of the scariest things I have ever experienced. I couldn't react to things in a normal way. I have a great sense of humor and I would be watching television and see something funny. I would think wow I know that is hilarious. But I couldn't laugh. It was like I could logically understand that it was fun and feel it but I couldn't express it. And it was similar with anger. I could see how a person might say, “that should make me angry, so I should react in a certain way.” Sadness was very strange too. Because not only couldn't I shed tears, now I couldn't even express sadness verbally. I think this is pretty close to what people on lithium feel. You can feel but you can't express. After that, I have this fear of ending up in a nursing home after a stroke, unable to speak and unable to cry, locked in my own misery.

If you have Sjogren's Syndrome and you are on SSRI's you might want to pay attention to how you experience emotions. Nienke van Leeuwen, a Ph.D. candidate in health psychology at Utrecht University in the Netherlands, found that 22 percent of patients with the Sjogren's Syndrome had "significantly more difficulty" identifying their own feelings than control participants did (Clinical and Experimental Rheumatology, 2012).

This condition doesn't need an antidepressant to cause it. You can read here all of the things that can cause it. Reduced affect display Emotional Detachment

A Dutch study of 300 people showed that 22% of the patients with Sjogren's Syndrome were clinically 'alexithymic'. This means they were having difficulty identifying and describing emotions. This was compared to only 12% of healthy controls. Other studies showed that those with higher levels of alexithymia had worse mental well being, proving a link between the two.


Tears can be a great relief for emotional stress and can get rid of pent up emotions. They actually reduce stress hormones. They also contain antibodies that fight of pathogens. After you cry, your breathing and heart rate decrease and you are calmer. Antibodies in human tears during and after infection. Effects of laughing and weeping on mood and heart rate variability

Dr. William Frey, a biochemist at the Ramsey Medical Center in Minneapolis discovered that emotional tears contain stress hormones that are being excreted through crying. When you cry, your body also produces endorphins. Endorphins are the hormones that make us feel good and are also pain relieving. Two of these are the endorphin leucine-enkephalin and prolactin. Another is adrenocorticotrophic hormone (ACTH), which is an indicator of stress in your body. Your body is getting rid of these hormones and toxins caused by stress. Emotional tears have a 24% higher albumin protein concentration that regular tears caused by irritation. Dr. Jerry Bergman writes, “Suppressing tears increases stress levels, and contributes to diseases aggravated by stress, such as high blood pressure, heart problems, and peptic ulcers.

Crying can also lower your manganese level. Elevated manganese can cause anxiety, nervousness, irritability, fatigue, aggression, and emotional problems. Manganese Induced Oxidative Stress

When you can't produce tears, even light and air can be irritating and painful and lead a person to avoid going outside. The result is yet another way to become isolated. People with dry eyes can also end up with complications like infections and ulcers.

As you can see, tears serve more of a purpose than just keeping foreign bodies out of our eyes. And the ability to cry or not cry shouldn't be taken for granted. We are the only primates that can do it and this ability is a profound influence on our lives. I pray that someday soon there will be an answer for people like me. I know that God intended for us to be able to express a whole range of emotions and although I  often can't cry about it, I am still sad. 

Ecclesiastes 3:4 says that there is an appointed time for everything, “A time to weep and a time to laugh; A time to mourn and a time to dance”. Romans 12:15 says we are supposed to “Rejoice with those who rejoice, and weep with those who weep”. The shortest and one of the most profound verses in the Bible is John 11:35, “Jesus wept”.

Emotional Expression and Health: Advances in Theory, Assessment and Clinical Applications
Ivan Nyklícek, Lydia Temoshok, Ad Vingerhoets
Routledge, 2004

Adult Crying: A Biopsychosocial Approach
A. J. J. M. Vingerhoets, Randolph R. Cornelius
Psychology Press, 2001

American Psychological Association (http://www.apa.org/monitor/2014/02/cry.aspx)

Sunday, April 30, 2017

Monday, April 17, 2017



People with autoimmune diseases have a particularly hard time keeping their skin moisturized and protected. And people with Sjogren's Syndrome have an even harder time because their body doesn't produce moisture to start with.

All of the options in the moisturizer aisle can seem overwhelming. They all make claims about what they will do for you. But there are particular ingredients you need to look for. I don't like to just go by advertising or word of mouth. I want to know what is in any products I use and they science behind it. I suppose that is because my Father was a chemist who worked until he retired at Proctor and Gamble. He often discussed with me the products that they made and why they were superior to others at the time. When I was a teenager, I actually tested out some of their products before they were on the market as a volunteer.

The following information on the difference between creams, lotions, and ointments come from the website of the National Eczema Association. They have a list of approved moisturizers there.


Ointments are semi-solid greases that help to hydrate the skin by preventing water loss. Petroleum jelly has no additional ingredients, whereas other ointments contain a small proportion of water or other ingredients to make the ointment more spreadable. Ointments are very good at helping the skin retain moisture but they are often disliked because of their greasiness.


Creams are thick mixtures of greases in water or another liquid. They contain a lower proportion of grease than ointments, making them less greasy. A warning: creams often contain stabilizers and preservatives to prevent separation of their main ingredients, and these additives can cause skin irritation or even allergic reactions for some people.


Lotions are mixtures of oil and water, with water being the main ingredient. Most lotions do not function well as moisturizers for people with dry skin conditions because the water in the lotion evaporates quickly.


Ingredients fall into three categories. Humectants such as glycerin and urea absorb water from the air and hold moisture in the skin. Other humectant ingredients to look for are hyaluronic acid, alpha-hydroxy acids, sorbitol, propylene glycerol, and sodium lactate. Emollients like mineral oil, lanolin and petrolatum fill spaces between skin cells to replace lipids and smooth and lubricate the rough skin. Other emollients to look for are jojoba oil, isopropyl palmitate, propylene glycol linoleate, squalene and glycerol stearates.Occlusives such as petroleum jelly and cocoa butter, are oily substances and they form a film on the top of skin which seals in cracks and prevents moisture from escaping.

Water: This is the main ingredient of moisturizers, and it serves to carry oil-based ingredients onto and into the skin, but oil-based ingredients also help lock water into the skin


Ceramides are waxy lipid molecules that are found in skin cell membranes that help prevent moisture loss. They are involved in things like programmed cell death of cells. Ceramides in your moisturizer will help maintain and repair your skin barrier, so that moisture stays sealed in and it helps your body's natural moisture defenses. That is especially important for people who have eczema and psoriasis because studies have found that they have fewer ceramides than people who have normal healthy skin.

Cerave, as the name implies has ceramides in it. It also has Dimethicone, Hyaluronic Acid, Glycerine.
If you follow this link you can get a coupon for it from their website: Cerave Coupon The Itch Relief type also contains Pramoxine Hydrochloride which is an external analgesic, Shea Butter, Tasmannia Lanceolata Fruit Extract,

Curel says it has a proprietary ceramide-rich formula.


Peptides are chains of amino acids. Amino acids include the 22 proteinogenic ("protein-building") amino acids, that combine into peptide chains ("polypeptides") which form the building-blocks of proteins. In this case, the peptides and amino acids are involved in building proteins in the skin.

Products that contain short chain amino acids can penetrate the top layer of skin and stimulate the cell production.

Collagen is an important protein in skin. It is involved in the thickness and pliability(stretchiness) of skin. Collagen breaks down for things like environmental factors (sun and stress, chemical exposure) and age. This causes wrinkles. Peptides stimulate the production of collagen thereby reducing wrinkles

Elastin has the ability to stretch and return to its original length—like a spring or rubber band. Elastin is the major component of ligaments (tissues that attach bone to bone) and skin. In people who have connective tissue disease, it is common for collagen and elastin to become injured by inflammation. So if you have MCTD or SLE Lupus or Sjogren's Syndrome, Scleroderma, Rheumatoid Arthritis, or Psoriatic Arthritis your collagen is probably not functioning properly.

If a product has that in it, it's probably something we could use.

Hyaluronic Acid

Hyaluronic Acid works by binding to moisture. It can hold up to 1,000 times its weight in water, making it an excellent natural skin plumper. Hyaluronic acid helps your skin repair and regenerate itself after suffering from dryness, environmental stresses, or irritation. It helps the collagen and elastin in your skin stay moist and helps it to keeps it elasticity. It is also lightweight and isn't oily, which is good if you are acne-prone.
Fatty Acids

Fatty acids come in things like Olive oil, avocado, almond oil, and shea butter which are essential fatty acids that help lock in moisture. Your body needs fatty acids for fuel to do things like produce moisture. But it doesn't produce it on its own, so you have to either ingest it or apply it topically. Foods that have Omega-3 fatty acids in them are things like salmon, mackerel, walnuts, soy, flaxseed, and safflower oil. I take a supplement that combines fish oil, flaxseed oil and borage oil in it.


Glycerin is a simple polyol compound derived from sugar alcohol. It is colorless and odorless. Glycerin and glycols help to retain water in a product, in hair or the top layers of skin by drawing moisture in and then retain it. Glycerin can actually absorb moisture from the air.

Ethylhexyl glycerin

Ethylhexyl glycerin (oct oxy glycerin) is a topical skin care ingredient and deodorizing agent, often indicated as a conditioning ointment in the treatment of eczema. As its name suggests Ethylhexyl glycerin is made using glycerin.

Sodium PCA,

Sodium PCA is used in lotions and hair care products because it is naturally in skin cells and it binds to water in cells and that means it is great for water absorption.

Caprylic/Capric Triglycerides

Caprylic/Capric Triglycerides is a mixed triester derived from coconut oil and glycerin. It comes in the form of an oily liquid and is sometimes mistakenly referred to as fractionated coconut oil. Caprylic mainly works as an emollient, dispersing agent and solvent.)

Piroctone Olamine

Piroctone Olamine is used to treat skin conditions and dandruff. It is an antifungal.


Locochalcone is a molecule contained in licorice root extract which helps control oil production and is anti-bacterial as well as anti-inflammatory. In short, it helps calm and soothes skin.


Dimethicone is used as a moisturizer to treat or prevent dry, rough, scaly, itchy skin and minor skin irritations (e.g., diaper rash, skin burns from radiation therapy). It softens and moisturizes the skin and decreases itching and flaking.

Triethanolamine (TEA)

Triethanolamine (TEA)This emulsifier helps to blend the oil/water mix that makes up moisturizer.

Vitamin A

Vitamin A is usually in the form of retinol or retinoic acid in moisturizers. It is anti-aging. It works by stimulating collagen production, which fills in lines and wrinkles

Vitamin C & vitamin E

Vitamin C & vitamin E are antioxidants and they help repair cellular damage caused by sun, pollution and free radicals that are created during oxygenation.

Magnesium Aluminum

Magnesium Aluminum Silicate is a naturally occurring mineral derived from refined and purified clay that is used primarily as a thickener in cosmetics and beauty products. It is an off-white powder used in the pharmaceutical manufacturing process as an absorbent; anticaking agent; opacifying agent; slip modifier; and an aqueous viscosity increasing agent. But magnesium is considered as ”the mineral of beauty” in traditional Chinese medicine. Magnesium deficiency results in lower levels of fatty acids on the skin. This results in less elasticity and moisture and that, in turn, causes dryness and inflammation. If you take magnesium to boost the levels in your cells, it helps protect the cells and detoxifies them and encourages healthy skin tissue growth. It helps in DNA replication and repair. It also prevents free radical damage and inflammation.

In a 2007 study cited in the “American Journal of Clinical Nutrition,” Magnesium was discovered to help reduce inflammation caused by an excess amount of E-selectin and C-reactive protein.

When the skin is injured or damaged or when acne-causing bacteria enter the skin, E-selectin is produced. This results in acne inflammation. Magnesium helps reduce E-selectin’s effects and prevents the inflammation.

Magnesium aluminum is sometimes called Kaolin or China Clay.

At the Skin Store website I found this:

Kaolin (also know as China clay, hectorite or magnesium silicate) is a naturally occurring soft clay. In cosmetics, kaolin helps to cleanse and exfoliate dead skin cells and debris from the surface. It adds absorbency, texture, and bulk to cleansers.

...Because it’s safe nature and has great absorbency and soothing properties, it’s quite the popular ingredient in formulas designed to purify

Kaolin wages war on acne and breakout-prone skin by improving the skin’s balance and decreasing levels of pore-clogging oils, dirt and toxins. General skin inflammation, caused by the usual environmental factors can also be addressed with kaolin cleansers. Kaolin increases circulation to the impacted areas of skin, helping to stimulate healing and to reduce irritation. Using a cleanser that contains kaolin prior to applying makeup can help to control oil production and prevent unwanted shine.”http://www.skinstore.com/blog/skincare/beauty-glossary-kaolin/

Eczema is associated with a magnesium deficiency. If you have a deficiency of magnesium your body will produce histamines. Those histamines will cause you to be itchy and have red blotches or hives on your skin. They are caused by blood vessel swelling that causes fluid to leak into the skin and other tissues.

Taking supplements gives some people diarrhea. But if you can take it, it helps avoid kidney stones and calcification in the joints too. It also good for circulation and high blood pressure. Doses less than 350 mg daily are safe for most adults. When taken in very large amounts, magnesium is POSSIBLY UNSAFE. Large doses might cause too much magnesium to build up in the body, causing serious side effects including an irregular heartbeat, low blood pressure, confusion, slowed breathing, coma, and death. Magnesium strengthens bones; maintains nerve and muscle function; regulates heart rhythm and blood sugar levels, and helps maintain joint cartilage.http://www.arthritis.org/living-with-arthritis/treatments/natural/vitamins-minerals/guide/magnesium.php

I know some people apply magnesium oil directly to their skin. But I don't know about the safety of it.

Vaseline, Intensive Care, Cocoa Radiant, With Pure Cocoa Butter, Non-Greasy Lotion is one of my stand-bys. It has Glycerin, Triethanolamine, Dimethicone, magnesium aluminum, shea butter and cocoa butter in it. And of course vaseline.

Eucerin Calming Cream and the Eucerin Eczema Relief Body Creme is good lotion it has Oatmeal, Ceramides, Caprylic/Capric Triglycerides, Castor oil, Piroctone Olamine, Licochalcone, Ethylhexylglycerin.

                          "Moist" Is A Disgusting Word - Here's Why


After you have considered all of the other ingredients, don't forget the sunscreen. You need an SPF of at least 30. I happen to think people with Lupus SLE and Sjogren's should use the highest they can get. If it isn't in your moisturizer, you may have to use a separate one. I have some for sensitive skin that I use and that have pretty high SPFs.

I haven't tried it but just by virtue of the fact that it also hydrates this one seems promising.

And since I know the spray on is good, I might try these:

A facial moisturizer with an SPF 50 seems like a pretty good idea. I love my Oil of Olay products, but as far as SPF is concerned, I think this is the highest SPF. Olay Complete Daily Defense All Day Moisturizer With Sunscreen SPF30 Sensitive Skin

If you have ever given birth then you are probably familiar with Palmer's Cocoa Butter products for stretch marks. But they make products for your face now and they are excellent. If they can help with stretch marks they have got to be doing something right. If you compare the ingredients to the ones listed above, you can see that they are very good for your skin. And I have some of them and they worked pretty well. I used the serum and day cream in the day and the night cream, obviously at night during a time that my face was super dry.

They have an SPF 15. Some of them say they promote collagen production and they contain antioxidants, a peptide complex, and vitamins A, B1, B2, B3, C and E. It depends on the individual product. Among other ingredients they contain, Hydrogenated Palm Glycerides, Theobroma Cacao (Cocoa)Seed Butter, Dimethicone, Butyrospermum Parkii (Shea) Butter, Oenothera Biennis (Evening Primrose) Flower Extract, Aloe Barbadensis Leaf Juice, Hydrolyzed Milk Protein, Glycerin, Triethanolamine. The night cream contains Natural Cocoa Butter, Retinol and Antioxidant Vitamin E.

They also have a gel oil for the body with an SPF 15 and cocoa butter, vitamin E, shea butter, jojoba oil. Palmer's Formula Moisturizing Gel Oil, Cocoa Butter, SPF 15

Last but not least I just discovered a new moisturizer line that sounds interesting. Garnier SkinActive Moisture Bomb “WATER-LIGHT FORMULAS. ANTIOXIDANT-PACKED HYDRATION.
Including formulas that feature goji berry and pomegranate, our refreshing gel cream, SPF 30 lotion, and all new super hydrating sheet masks blast dryness away, flooding skin with long-lasting hydration for a softer, healthier-looking complexion.”

Lupus, The Skin & Hair - Dr Abby Macbeth

Friday, April 14, 2017

What is Raynaud's (ray-NOHDZ) disease?

What is Raynaud's (ray-NOHDZ) disease?

It is a condition that causes some of the areas of your body, usually but not always the extremities, such as your fingers and toes — to feel numb and cold when they become cold. Stress can also cause symptoms.   When you have Raynaud's disease the smaller arteries which supply blood to your skin narrow, decreasing the blood flow to affected areas. This is called vasospasm.

More women than men have Raynaud's disease. It is also called Raynaud's phenomenon or syndrome. People who have it usually just say, “Raynaud's” without the other descriptive words. People who live in colder climates are more likely to have it.

If you have Raynaud's, your treatment is largely dependent upon how severe it is and also any other conditions you may have. It isn't usually life threatening, but it does affect how you live on a day to day basis.

Simple things can bring on an attack, like digging around in your freezer for that roast you know is in there somewhere. It doesn't take long for your hands to turn colors and hurt. And it gets worse when you take your hands out of the freezer and the circulation comes back into them. Other things like going out into the cold or putting your hands into cold water can cause the same symptoms.

Some of the symptoms include:

Cold fingers or toes
Color changes in your skin in response to cold or stress
Numb, prickly feeling or stinging pain upon warming or stress relief

Your fingers or toes get cold and then they turn white. Then they progress to blue and start to feel numb and cold. And then when you seek to warm them up, and the circulation starts to come back into them, they become painful, with throbbing and tingling and they turn red. Some people like me don't have all three color changes. I usually don't turn blue. But that may be because I avoid getting my hands and feet cold. They may never get cold enough to cause the change from white to blue. But I have had them do that years ago. It can take as much as 15 minutes for the blood flow in an affected area to return to normal.

There are other areas of the body besides the fingers and toes that can be affected by Raynaud's. Your ears, lips, and nose can be affected.  Raynaud's can even affect the internal organs. And even more embarrassing areas like your nipples and your rear end. Yes, now you can tell your husband that “turkey butt” is a medical condition and you can't help it.

I purposefully chose photographs that don't look too severe. Not everyone looks like they are ready for amputation when they have an attack of Raynaud's and if you look at the severe cases you might not recognize it in yourself. If you have bad discoloration you can google it and come up with photos.

The exact cause of Raynaud's hasn't been determined yet. Something causes the blood vessels in the hands and feet to overreact to cold temperatures or stress. This overreaction is called vasospam. During vasospasm the arteries that supply blood to your fingers and toes spasm due to cold exposure or stress and narrow which causes a decrease in the blood supply. This eventually causes the arteries to thicken which further limits the blood flow.

Raynaud's phenomena in real time.

There are two classifications of Raynaud's.

It is also called Raynaud's disease and it's usually isn't caused by some other medical condition. It usually begins earlier in life than Secondary Raynaud's between 15-30 years of age. There seems to be a genetic predisposition to Primary Raynaud's. Approximately 1/3 of patients with Primary Raynaud's have a parent, sibling or child who also has it the disorder.

It is also called Raynaud's phenomenon and is less common than Primary Raynaud's. and it usually is caused by something else. It is usually more serious. Onset is usually around the age of 40.
There are two main types of the condition.

Things that cause Secondary Raynaud's are Connective tissue diseases like Scleroderma, Rheumatoid Arthritis, Sjogren's syndrome, and Lupus. Scleroderma can cause a hardening or thickening of the blood vessels. Sjogren's, Lupus and RA cause inflammation of the nerves that cause the blood vessels to constrict. Up to 1/3 of Lupus patients have Raynaud's. And 15-30% of Sjogren's patients have Raynaud's. I have both Lupus and Sjogren's so it was probably inevitable that I would have Raynaud's.

Hardening of the arteries also called atherosclerosis and high blood pressure in the lungs called primary pulmonary hypertension also cause Raynaud's. These things can be exacerbated by smoking because it causes the blood vessels to constrict.

If you have Carpel tunnel syndrome causes numbness and pain in your hands due to pressure on the nerves. This can cause your hands to be susceptible to temperature changes and lead to Raynaud's. Operating tools which vibrate can cause you to develop Secondary Raynaud's.

Raynaud's disease is also associated with dysautonomia. With regard to Postural Orthostatic Tachycardia, Neurocardiogenic Syncope and Orthostatic Hypotension, an interview on Dysautonomia International had this to say:  “We do not know how many POTS, NCS or OH patients have APS, but Dysautonomia International recently funded a research project designed by Dr. Svetlana Blitshteyn to try to shed some light on the topic of autoimmune markers and autoimmune conditions in patients with POTS.  Dysautonomia International will make an announcement when Dr. Blitshetyn’s study results are released.” And in the article, it says that Raynaud's disease is a symptom of Antiphospholipid Syndrome. So you can say that Raynaud's is associated with dysautonomia.What Dysautonomia Patients Should Know About Antiphospholipid Syndrome Postural Orthostatic Tachycardia SyndromeA Dermatologic Perspective and Successful Treatment with Losartan

That's not too surprising. People with dysautonomia and POTS have problems regulating temperature in general and blood flow problems because of inadequate pressure in the blood vessels. And POTS, like Raynaud's disease, is associated with autoimmune diseases.


Beta blockers, migraine medications, ADD/HD medication, and cold medications can all cause Raynaud's or make it worse because they cause constriction of the blood vessels.

There are also some chemicals that can cause Secondary Raynaud's.

It can become severe enough that you need to seek medical help. You definitely need to see a doctor if you get a sore on one of the areas affected so that you don't end up with an infection and lose an appendage.

Some people have a permanent reduction or blood flow which causes their fingers and toes to become deformed. If a complete blockage of an artery occurs, you can get skin ulcerations and ultimately gangrene, which is why it is important to see a doctor if you get a sore on an affected area to avoid having an amputation.


There are things you can do for Raynaud's. Wearing warm clothes, socks and gloves in cold weather are essential. Ear muffs and masks and scarves to keep your nose warm are also good ideas. Some people wear the socks and gloves when they are sleeping. And the gloves come in handy when you have to get into the freezer, but I personally never remember to do it. Avoid getting cold in the first place. Smoking is a no-no. Avoid stress because it can bring on an attack. And exercise increases circulation.

If you get cold, go inside and warm up. Two things that you should do are almost instinctive for people to do. Wiggling your fingers and toes and rubbing them to get them warm. You can also put your hands in your armpits and swing your arms to increase blood flow. You can run warm water over them too. Just don't get the water too hot.


And there are medications that help.

Calcium Channel Blockers relax the small blood vessels which help avoid the vasospasms. Common drugs in this class are Procardia, Norvasc, and Verapamil and Nifedipine.

Alpha blockers like prazosin and Cardura work by counteracting noradrenaline also called norepinephrine. This hormone causes blood vessels to constrict.

Vasodilators Nitroglycerin works as a vasodilator and comes in a cream and will facilitate the healing of ulcers. Losartan, which is a high blood pressure medication, and Viagra, as well as antidepressants like fluoxetine, can help treat Raynaud's.

Fish oil has fatty acids in that are supposed to make you less susceptible to cold.  Studies have shown that it didn't help people who have Secondary Raynaud's. You have to be careful when taking high doses of fish oil because it acts as a blood thing and increases your risk of bleeding, particularly if you take blood thinners, like as warfarin (Coumadin), clopidogrel (Plavix), or aspirin. Discuss it with your doctor.

Gingko is also supposed to be helpful by opening up the blood vessels. One study showed that Raynaud's patients had less pain if they took 160 mg of ginkgo per day. DO NOT take ginkgo if you have a history of seizures. Ginkgo can also increase risk of bleeding, especially if you take blood thinners. Talk to your doctor.

Evening primrose oil also contains a  type of fatty acid which keeps your body from making chemicals that narrow blood vessels.  Studies have shown that taking Evening primrose oil will lessen the severity of attacks as well as the frequency. EPO can make seizures worse in people who already have them and they shouldn't take it. And just like fish oil, there is a risk of bleeding with it.

There is a form of vitamin B3(niacin) called Inositol hexaniacinate. It may reduce the number of Raynaud's attacks. But it requires high doses and needs to be monitored by a doctor.

Taking Magnesium supplements opens the blood vessels, but there haven't been any studies to show if it works. Some people get diarrhea from taking it, so take it with a meal to help avoid this problem. It can also interfere with some medications like high blood pressure medication and antibiotics, so your doctor needs to be aware if you are taking it.

Biofeedback to lessen the effects of stress on your body may help lessen the frequency of attacks. Accupuncture is another treatment option that helps by improving blood flow to the affected areas. There is also a specific kind of biofeedback called Thermal Biofeedback that studies have shown works.

Surgery and injections

When lifestyle changes and medication don't help enough, sometimes things like surgery and injections of chemicals are the next line of treatment.

There are nerves in your feet and hands that control vasoconstriction and dilation. There is a surgery called a sympathectomy, in which these nerves around your blood vessels in your hands or feet are cut to stop the over-constriction. For some people it is helpful.

Botox injections can also block the sympathetic nerves and block the over-constricion.

For more information visit this link for a guide to Raynaud's
Raynaud’s Guide: The Cold Facts on Raynaud’s

These are links to my sources:



Raynaud's Awareness

Pathophysiology Raynaud's Disease  

Monday, April 10, 2017


I've been thinking about suicide, not for myself, but suicide in the news and how suicide affects people with chronic illness. There was a recent incident in the news about an 11-year-old boy who committed suicide. When I was 12, my very first boyfriend, who was only 13, committed suicide and it colored the rest of my life. facebook-prank-leads-11-year-old-boy-commit-suicide/

My maternal grandmother was chronically ill most of her life. She eventually gave up and became catatonic. She was 1/4 Cherokee Indian and Native Americans used to go off by themselves and will themselves to die when they believed they had become a burden on their society. I believe in my heart that is what she did.

Other members of my family were bipolar and I am familiar with threats to just give up and die, quit taking medication, shoot themselves, burn down the house, etc. It's one reason I am determined never to do that to anyone if I can help it. 

The areas of personal knowledge that I have come to experience with regard to chronic illness are: heart disease, diabetes, COPD, Parkinson's Disease, Crohn's Disease, Systemic Lupus Erythematosus, Sjogren's Syndrome, Chronic Kidney Disease and Kidney Failure, Postural Tachycardia Syndrome, Rheumatoid Arthritis and Osteoarthritis, Migraines, Depression, Bipolar Depression and several other illnesses.

In people with chronic illness, there doesn't have to be any clinical depression involved. People with chronic illness become suicidal because of poor quality medical care because their illness is difficult to diagnose and to treat; being told by everyone around you from doctors to friends and family that your illness and symptoms are all in your head; decreased mobility; poor memory, confusion and other cognitive function that decreases their quality of life; lack of support and love from the very people who are supposed to be there for you; and due to that, feeling isolated and alone; feeling like you are a burden; and an overall loss of hope.

“Comorbid conditions that pose risks for suicide, especially depression, are prevalent in people living with chronic pain. The true numbers of failed attempts and successful suicides are unknown and may never be determined. Yet risk factors for suicidal ideation are so high in this population that it must be assumed that some proportion of those who die of drug overdoses might have intended to end their lives, not just temporarily relieve their pain.” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3125689/

“Between 2005 and 2007, emergency department visits for drug-related suicide attempts increased by 30% and there was an overall 55% increase in opioid-related attempts.”

Those are staggering statistics when you think about it. Since those statistics were released, the United States has had a heroin epidemic. I happen to live across the Ohio River from America's Death Capitol, Huntington, WV. In America's drug death capital: How heroin is scarring the next generation

In modern society, suicide is considered to be a deviant act and believed to be a sign of severe mental illness or something done on impulse or out of despair. But for many people, committing suicide may appear to be the only way out of their situation which is causing their suffering be it mental, physical or both.

In 2007, statistics showed suicide was the 11th highest cause of death in the United States. More than 34,000 people die due to suicide and over 376,000 people visit emergency rooms due to self-inflicted injuries annually. Among those who died, one-third tested positive for alcohol and one in five showed evidence of opiates including prescription drugs and heroin.

And between 1999 and 2014, suicide rates have jumped 24%.

Among the risk factors for suicide is a family history of suicide, history of childhood abuse, previous suicide attempts and history of mental disorders, which include depression, alcohol and substance abuse, impulse disorders. aggressive behavior, isolation, loss of jobs and/or family, physical illness and access to the means to kill themselves, along with a reluctance to seek help because of the stigma that is attached to mental disorders.

People commit suicide because they see it as an easy way out and a permanent solution to a problem. They feel hopeless as if it is their only option and an escape from the emotional pain that they're in.

                                     CLICK ON GRAPHIC FOR LARGER VIEW

It is not hard to see that people who are living with chronic pain have much in common with these people. People with chronic pain often experience hopelessness and isolation due to that pain. Socially they experience losses that include their job roles and family roles. And then due to their pain, they are prescribed opioids. And when the pain becomes too much the opioids are handy.

Having already experienced being overlooked and ignored by the medical community because of hard to diagnose chronic illnesses, these people are often reluctant to seek psychiatric treatment. Unfortunately, many of them have already been accused of having mental problems or drug seeking tendencies, they don't want to seek treatment for their illnesses. One survey found that 50% of chronic pain patients had seriously considered committing suicide due to the pain.

“These findings highlight the importance of pain as a potentially independent risk factor for suicide, particularly among those with head pain or multiple forms of co-occurring pain. Individuals suffering from chronic pain may be particularly appropriate for suicide screening and intervention efforts.”

Studies have found that the relationship between pain and suicidal ideation are affected by sleep disorders and catastrophizing. Catastrophizing is an exaggerated and negative focus on pain that leads to depression intensifying the pain and disability. The level of depression and pain catastrophizing was a pretty good predictor of the degree of suicidal ideation and poor pain coping skills were also associated with suicide independent of the level depression and pain severity. This study found that improving sleep and pain coping skills may reduce the incidence of suicidal thoughts and attempts.

Those most at risk for suicide are people over the age of 45, women, those with a dependence on alcohol, previous suicide attempts, and previous psychiatric hospitalizations. Other factors are besides chronic illness are frequent suicidal thoughts, a lack of social support, unemployment, having been divorced, and how severe their psychiatric disorders are. Things that indicate an increased risk of suicide are: giving away personal property, a lack of future goals, making a will, and/or having experienced a recent loss.


One of the most disturbing things I read when I decided to write this was that people with high levels of inflammatory markers have high suicidal ideation. That means that people like me who have one or more autoimmune diseases and the inflammatory processes that come with it are more prone to suicidal thoughts. And it can be a vicious cycle because psychological stress, in turn, raises levels of inflammation. Blood Test for Suicide Risk?

An article in the Journal of American Medical Association (Autoimmune Diseases and Severe Infections as Risk Factors for Mood DisordersA Nationwide Study)showed that autoimmune diseases and infections are risk factors for subsequent mood disorder diagnosis.

A prior hospital contact because of autoimmune disease increased the risk of a
subsequent mood disorder diagnosis by 45%. Any history of hospitalization for infection increased the risk of later mood disorders by 62%. The 2 risk factors interacted in synergy and increased the risk of subsequent mood disorders even further. The number of infections and autoimmune diseases increased the risk of mood disorders in a dose-response relationship. Approximately one-third (32%) of the participants diagnosed as having a mood disorder had a previous hospital contact because of an infection, whereas 5% had a previous hospital contact because of an autoimmune disease.


Two of the types of chronic pain with the highest incidence of suicidal thought are migraines and back pain. Pain from migraine & severe headache increases suicide risk I have to say I understand why migraine sufferers have a 4 times greater risk of suicide. I have prayed to die during a migraine. The study showed that even though migraine sufferers also often have depression, it was their pain level that made them suicidal.

“These findings highlight the importance of pain as a potentially independent risk factor for suicide, particularly among those with head pain or multiple forms of co-occurring pain. Individuals suffering from chronic pain may be particularly appropriate for suicide screening and intervention efforts.”

After patients with chronic illness have been screened for depression and suicidal ideation, they should be referred for counseling with a behavioral health specialist. Whether or not they require inpatient treatment basically depends on how severe their depression and suicidal ideation is. It also depends on whether their thoughts of suicide have been vague or if the have had specific plans and also the means to carry out the plans, such as access to medicine in high enough doses to be lethal, or previous attempts, a history of impulse control problems. The level of support from family and friends and their coping ability also are significant. People who are severely depressed and suicidal but also need to take opioids should only have access to small amounts at a time. Their doctor can write their prescription for small amounts and their family members can give them their medicine daily. Overall, having their family involved in their treatment is vital. They also need to be given medication for depression and to help sleep problems. There are other treatments for relaxation and insomnia as well. Efficacy of guided imagery with relaxation for osteoarthritis symptoms and medication intake.


One of the best ways to help people with chronic illness is to listen to them and believe them when they tell you they are sick and how they feel. Telling someone that it is all in their head is not helpful and is downright damaging to them. Help them find medical care and keep looking until they find a doctor with the answers.

Reach out to them by phone or text if you can't see them in person so that they don't feel so isolated and lonely.

Know the signs.

If you think they might be suicidal, ask them and if they say yes, take it seriously. Sometimes suicidal people just haven't been able to bring themselves to say it out loud and need help asking for help.

Help them get help. You really don't want to be wrong.

The following is information and videos for you or anyone you know who is or might be suicidal or having suicidal thoughts.

There are tools to screen for depression and anxiety. They are usually based on the (DSM-IV TR).

Highest Score is 66. To rate the severity of depression in patients who are already diagnosed as depressed, administer this questionnaire. The higher the score, the more severe the depression.

This one is an interesting assessment of how disabled you are and asks questions about how difficult it is for you to go about your day to day activities. It includes things like difficulty remembering things, concentrating, standing, sitting, getting along with other people, household tasks, school/work, and social activities. WHODAS 2.0 (World Health Organization Disability Schedule 2.0, 36-item version, self-administered.

This website has confidential screening tests

This news story and video shows you how to flag a video if you see a video of someone planning to commit suicide.

The following URL will take you to a site with a number to text if you are in crisis.

Who can text?

People of all ages – we’re not just for teenagers. Parents, college students, older adults, and anyone else are welcome to text.
What happens when you text us?

You’ll be connected to a trained Crisis Counselor who is ready to take you from a “hot moment” to a “cool calm.” They’ll actively listen to you to help you determine your next steps to stay safe. They won’t offer direct advice, but they can guide you to coping skills.
FreeCrisis Text Line does not charge for the support it provides. Standard messaging fees are waived on Verizon, AT&T, T-Mobile, and Sprint, and texts to 741741 will not appear on your phone bill if you use one of these carriers.

Confidential – What you say stays between you and the Crisis Counselor. If you are in immediate risk of seriously hurting yourself or others, emergency services may be contacted. We are mandated reporters for cases of abuse of a minor.

24/7 - Help is available around the clock – we answer over 90% of texters within 5 minutes or less.

Nationwide – Volunteers from around the country, supporting people in crisis across the country.


                                       16 Minutes- Suicide Prevention Video

                                       Why do chronic pain patients kill themselves?